This is a position that requires our trust in you and your autonomy, and all of that is based on your history and experience as someone who is proven in their ability to raise funds. This is not an entry level position with training, we are absolutely looking for a person established in this field that is willing to volunteer with us.
Ideally you would have a number of connections with individuals or companies that have philanthropic desires.
You will work with local and international partners to best place ourselves in situations where we can be in front of donation opportunities.
You will build plans based around scenarios to fully realised the opportunities, for example cold, warm and hot approaches.
You will have a fantastic relationship with our treasurer who will support you. You will also have a strong working relationship with our social media team and other members of our executive team.
You will have the understanding necessary to explain the incredible impact that the donors can have by donating to us (we will provide you training in this).
We have an unbelievably hard hitting global team that is on the cutting edge of medical and genetic research focused on finding therapies and ultimately the cure for FOXG1 syndrome as well as other brain related disorders. Your efforts will have a direct impact on genetic and medical research not only for us but for all rare diseases. We support and fund research projects globally and have been recognised for our incredible work so far by the Chan Zuckerberg Initiative amongst other donors. We have our own centre of excellence that is purely focussed on FOXG1 syndrome which is led by parents of a child with FOXG1 syndrome.