FOXG1 syndrome is a rare, paediatric neurological disorder affecting brain development for which there is currently no cure. We are looking for volunteers experienced in planning and executing fundraising programs, including identifying and approaching major donors, Trusts, Foundations, and advising on opportunities for grant funding so that we can support the essential medical and genetic research needed to offer affected children and their families a brighter future.

We are looking for a volunteer to assist us with editing videos. We are recording webinars on the latest in genetic editing technology, genetic research, speeches at various events and more. We are looking at doing a number of quite short video's (sub 10 minutes) where we will be going deep in a particular area of interest. If you have any graphic design skills that might also be interesting to us on some other projects.