Volunteer Patient Support Assistant (Virtual – National Role)

Organisation: Sjögren’s Australia

Detailed Description Sjögren’s Australia is seeking compassionate volunteers with nursing experience to provide support to individuals navigating the often complex journey of Sjögren’s disease — from seeking a diagnosis to managing ongoing treatment. This is a virtual role conducted from home, offering flexibility and the chance to make a meaningful difference in people’s lives.

You will be guided and supported by our Head Nurse, working as part of a small, friendly team dedicated to improving the lives of Australians affected by this chronic autoimmune condition.

Key Duties

Provide empathetic, informed conversation and reassurance to patients and families via email, phone, or virtual sessions. Work to integrate a solid diagnosis and treatment plan as constructed by our head nurse.

Offer practical guidance on managing symptoms and navigating the healthcare system (under the supervision of the Head Nurse).

Direct patients to reputable information and resources provided by Sjögren’s Australia.

Support individuals emotionally during their diagnosis journey and help them feel heard and understood.

Record interactions confidentially and report any concerns or trends to the Head Nurse.

Skills and Experience

A background or strong interest in nursing, allied health, counselling, or community support.

Excellent communication and listening skills, with a high level of empathy and professionalism.

Confidence working virtually (via Zoom, Teams, or email).

An understanding of patient confidentiality and boundaries.

Prior experience with chronic illness support or peer mentoring is desirable but not essential — full guidance will be provided.

About Sjögren’s Australia

Sjögren’s Australia is a national, patient-led not-for-profit charity dedicated to raising awareness, supporting patients, and advocating for better care and research for those living with Sjögren’s disease. We collaborate with leading medical experts and provide trusted information and support to thousands of Australians affected by this under-recognised condition.

Benefits of Volunteering

Receive mentoring and supervision from an experienced Head Nurse and medical advisory team.

Gain valuable experience in patient support and chronic disease care.

Be part of a warm, collaborative national network improving health outcomes.

Make a genuine difference to people living with an invisible illness.

Impact

Your support helps reduce isolation, improve patient confidence in navigating healthcare, and ensure that every person with Sjögren’s disease feels understood and supported through their journey.

How to Apply

Please submit a brief expression of interest outlining your background, availability, and motivation for joining our volunteer team. Shortlisted applicants will be contacted for an informal online chat with our Head Nurse.