Role Overview:

As a General Committee Member of the Australian NPC Disease Foundation (ANPDF), you will play an essential role in supporting the foundation’s projects and initiatives. Whether you bring fresh ideas, a particular skill set, or a willingness to assist with diverse tasks, your contributions will help improve the lives of families affected by Niemann-Pick Disease (NPC).

Key Duties:

• Support Sub-Committees: Assist with specific projects or initiatives based on your interests and skills.
• Community Engagement: Help foster connections and communicate with families, stakeholders, and the public.
• Event Assistance: Contribute to planning and running events such as fundraisers, awareness campaigns, or educational programs.
• Content Creation: Develop social media posts, educational materials, or website content to raise awareness about NPC.
• Meeting Participation: Attend monthly online board meetings to provide input and stay updated on the foundation’s activities.

Skills and Experience Needed:

• Flexibility: A willingness to contribute to various projects and adapt to changing priorities.
• Teamwork: Ability to work collaboratively with board members and volunteers.
• Creativity: Fresh perspectives and innovative ideas are welcome to enhance our initiatives.
• Technical Skills (optional): Experience in areas like social media, website development, content creation, or event planning is highly valued.
• Passion for the Cause: A genuine interest in supporting individuals and families affected by NPC.

About ANPDF:

The Australian NPC Disease Foundation (ANPDF) is a national organisation dedicated to supporting individuals and families impacted by Niemann-Pick Disease. Our efforts focus on raising awareness, advocating for access to treatments, and fostering a supportive community through initiatives like the National Care and Guidelines project and Annual Conference.

Benefits of Volunteering with ANPDF:

• Purpose-Driven Work: Contribute to meaningful initiatives that directly impact families affected by NPC.
• Skill Development: Build your experience in event planning, communications, community engagement, and more.
• Flexible Commitment: Participate in monthly online meetings and dedicate approximately 3 hours per month.
• Collaboration: Join a supportive team committed to making a difference.
• Networking Opportunities: Connect with advocates, professionals, and families in the rare disease community.

The Impact of Your Role:

As a General Committee Member, your contributions will enhance ANPDF’s capacity to raise awareness, advocate for treatment options, and support the NPC community. Whether you assist with an event, manage social media, or provide fresh insights, your efforts will make a tangible difference in the lives of those we serve.

How to Apply:

To stand for election to the ANPDF Committee, nominees must submit a completed nomination form with a proposer and seconder available at npcd.org.au/agm.

New to ANPDF? If you don’t yet know any members to support your nomination, apply here or visit npcd.org.au/agm to submit your Expression of Interest (EOI).

1. Submit an Expression of Interest (EOI) to the General Manager.
2. We’ll help facilitate introductions with current members.
3. Once two members agree to support your nomination, your form can be finalised and included in the AGM election process.

Join us in managing ANPDF's finances and enabling impactful change for families living with NPC!