Role Overview:

The Secretary of the Australian NPC Disease Foundation (ANPDF) ensures smooth operations by managing the organisation’s documentation, communications, and meeting logistics. This critical role keeps the board organised and aligned, helping to advance ANPDF’s mission of supporting families impacted by Niemann-Pick Disease (NPC).

Key Duties:

• Documentation Management: Organise and maintain committee documents, ensuring they are up-to-date and accessible.
• Minutes and Records: Accurately record and distribute minutes from monthly board meetings.
• Member Communication: Send timely updates, meeting notices, and relevant correspondence to members and stakeholders.
• Event Coordination: Manage administrative tasks for the Annual General Meeting (AGM), including scheduling, notices, and documentation.
• Administrative Support: Provide general administrative support to the board, including handling correspondence and record-keeping.
• Sub-Committee Participation: Contribute to sub-committees or projects based on your interests and expertise.

Skills and Experience Needed:

• Organisation: Strong organisational skills to manage multiple tasks and maintain accurate records.
• Communication: Excellent written and verbal communication skills.
• IT Literacy: Comfortable using or willingness to learn digital tools for document management, meeting coordination, and communication.
• Minute-Taking Experience: Prior experience in taking and distributing meeting minutes is highly regarded, although not essential.
• Attention to Detail: Precision in managing and distributing important information.
• Collaboration: Ability to work closely with a team of dedicated board members and stakeholders.

About ANPDF:

The Australian NPC Disease Foundation (ANPDF) is a national organisation dedicated to supporting individuals and families impacted by Niemann-Pick Disease. Our efforts focus on raising awareness, advocating for access to treatments, and fostering a supportive community through initiatives like the National Care and Guidelines project and Annual Conference.

Benefits of Volunteering with ANPDF:

• Meaningful Impact: Contribute directly to an organisation dedicated to supporting families affected by NPC.
• Skill Development: Enhance your organisational, administrative, and leadership abilities.
• Flexible Involvement: Attend monthly online meetings and commit to an estimated 3 hours per month.
• Supportive Community: Join a passionate team working towards a shared purpose.
• Networking Opportunities: Connect with professionals, advocates, and families in the rare disease space.

The Impact of Your Role:

As Secretary, you’ll ensure the smooth operation of ANPDF by keeping our board organised, informed, and prepared to act. Your efforts will empower us to continue advocating for treatment access, raising awareness, and supporting families across Australia.

How to Apply:

To stand for election to the ANPDF Committee, nominees must submit a completed nomination form with a proposer and seconder available at npcd.org.au/agm.

New to ANPDF? If you don’t yet know any members to support your nomination, apply here or visit npcd.org.au/agm to submit your Expression of Interest (EOI).

1. Submit an Expression of Interest (EOI) to the General Manager.
2. We’ll help facilitate introductions with current members.
3. Once two members agree to support your nomination, your form can be finalised and included in the AGM election process.

Join us in managing ANPDF's finances and enabling impactful change for families living with NPC!