Role Overview:

The Treasurer plays a vital role in ensuring the financial health and transparency of the Australian NPC Disease Foundation (ANPDF). Working closely with the President, board members, and our accounting partner, you will oversee the foundation’s financial management, ensuring compliance with reporting requirements and contributing to the organisation’s mission to support families affected by Niemann-Pick Disease (NPC).

Key Duties:

• Financial Oversight: Manage and monitor the organisation’s finances, including income, expenses, and budgets.
• Reporting: Present clear, concise financial updates during monthly committee meetings and prepare the annual financial report for the AGM.
• Collaboration: Work with ANPDF's accounting partner (CSM Advisors) to ensure accurate financial records.
• Compliance: Ensure financial practices align with the foundation's constitution and relevant regulations.
• Sub-Committee Participation: Contribute to projects or sub-committees based on your interests and expertise.

Skills and Experience Needed:

• Financial Literacy: A background in finance, accounting, bookkeeping, or similar experience.
• Attention to Detail: Ability to manage financial records accurately and ensure compliance.
• Communication Skills: Capability to explain financial information to non-financial stakeholders.
• Organisational Skills: Strong time management to handle monthly and annual reporting requirements.
• Team Collaboration: Willingness to work closely with a passionate and dedicated team.

About ANPDF:

The Australian NPC Disease Foundation (ANPDF) is a national organisation dedicated to supporting individuals and families impacted by Niemann-Pick Disease. Our efforts focus on raising awareness, advocating for access to treatments, and fostering a supportive community through initiatives like the National Care and Guidelines project and Annual Conference.

Benefits of Volunteering with ANPDF:

• Make a Difference: Ensure our financial health supports critical projects and initiatives.
• Professional Development: Gain valuable experience in non-profit financial management.
• Collaborative Environment: Work with a team of compassionate and driven individuals.
• Flexible Commitment: Participate in monthly online meetings and contribute approximately 4 hours per month.
• Recognition: Be part of a respected organisation making a tangible impact in the rare disease community.

The Impact of Your Role:

As Treasurer, your stewardship will ensure the financial stability of ANPDF, allowing us to continue advocating for NPC treatments, raising awareness, and supporting families across Australia. Your contributions will have a direct impact on improving the lives of those affected by this rare disease.

How to Apply:

To stand for election to the ANPDF Committee, nominees must submit a completed nomination form with a proposer and seconder available at npcd.org.au/agm.

New to ANPDF? If you don’t yet know any members to support your nomination, apply here or visit npcd.org.au/agm to submit your Expression of Interest (EOI).

1. Submit an Expression of Interest (EOI) to the General Manager.
2. We’ll help facilitate introductions with current members.
3. Once two members agree to support your nomination, your form can be finalised and included in the AGM election process.

Join us in managing ANPDF's finances and enabling impactful change for families living with NPC!