We need someone to help ensure that our latest information is pushed to all of our social media platforms as well as helping to organise online events from time to time (probably quarterly). You will be working with the team in Australia and in the USA and will be truly amazed by the incredible research that is happening. We will trust in your skills and experience and allow you a great degree of autonomy.

We have an unbelievably hard hitting global team that is on the cutting edge of medical and genetic research focused on finding therapies and ultimately the cure for FOXG1 syndrome as well as other brain related disorders. Your efforts will have a direct impact on genetic and medical research not only for us but for all rare diseases. We support and fund research projects globally and have been recognised for our incredible work so far by the Chan Zuckerberg Initiative amongst other donors. We have our own centre of excellence that is purely focussed on FOXG1 syndrome which is led by parents of a child with FOXG1 syndrome.